Still here At UMC

Skylar will be at the hospital another day at least...last night was hard. She had to go up on her oxygen and she began breathing treatments. The RSV mixed with chemo is doing a number on the poor little girl. Maybe tomorrow we will go home it's up to her little body. The good thing is at least we are here at the hospital and we have the comfort that she is getting everything she needs. She will go back on iv fluids to give her some support because the vomiting has increased with the coughing attacks. She is getting little rest at night but makes up for some of it during the day. For some reason the nights are the worst for her. Well she is napping so I should be doing the same. :) Ill write again soon and always, thank you for your support and prayers.

Skylar's 1st chemo treatment

Skylar was admitted this past Monday to begin her 1st chemo treatment. She was given the first half Monday night over 6 hours and she did pretty well. Her nausea was not bad and she even found time to play Tuesday. The 2nd portion of her chemo was given Tuesday afternoon. By Wednesday morning she was very sick, but not from the chemo so much, but from the virus she caught on top of everything. Skylar has RSV which is a respiratory virus that little kids get. Because of her lung disease and the chemo the doctors wanted to keep a close eye on her so we are still here at the hospital. Its Friday and we are hoping to go home today if the pulmonologist and oncologist think she is strong enough. The good thing is she has not had a fever since last night and her lungs are still clear through her horrible cough and congestion. The worry is that by Sat or Sun she will begin feeling the side affects of the chemo and her blood counts will go down. Fighting chemo and this RSV is a lot for her. We hope that the virus will subside just enough so she can keep fighting.... Poor baby she is definetly being hit with so much. Keep her in your prayers because she needs all the strength she can get.
For those family members who may want to visit her the doctors just ask that everyone that comes in contact with her must have their flu shot and anyone with young kids should not be around her until the virus is gone because it is highly contagious....I'll post again soon.

So with 2010 ended and a new year beginning...my little family is again on the downward slope of our rollercoaster of life. What I mean is our baby girl is sick and it's as if we are in the NICU again not knowing what is going to happen, if she is going to be okay? Skylar was diagnosed with hepatoblastoma, liver cancer, last week. She is in stage 3 which means the tumor is unresectable and needs to be shrunk with chemo. The plan is to do at least 2 sessions of chemotherapy and see then, if it is smaller enough to remove. We pray everyday that her little body will be stong enough to handle the gruesome side affects of chemo. That she will not lose too much weight, that her lungs will stay strong and she will not become too weak. Skylar has always been a fighter and I know she is determined to be here as she has already shown everyone around her. We ask for your prayers that she will fight this and be a healthy and happy child. Tomorrow we will meet with the doctor and discuss the plan and schedule for her chemotherapy for the next 6 weeks. I will do my best to keep everyone updated on how she is. We hope to begin treatment this weekend.

Thank you all for your love and support. We are so blessed to have so many people by our side.

Skylar's last Sunday at church until Chemo is done, very cute

Pictures of the tumor and Skylar after the biopsy to figure out if it was cancer

More pictures

Christmas 2010!!

Christmas is my favorite time of year! I love the decorations, the lights, family time and the feeling you feel! This Christmas was wonderful with Skylar home! Ryan and I had our own lil family time in the morning watching Skylar open all her gifts and I mean ALL her gifts. She was very loved this Christmas by everyone! I dont even have room for all her new toys!! Then it was off to see all the family! It was a good day and we can't say enough how much we loved spending it with our baby girl at home!!!! The day after we got to go to DISNEYLAND with Ryan's family..It was sooo crowded, but Skylar loved it..It was a whole new world for her, especially the Small World Ride!! She was so cute! Thank you Nymeyer Family for taking us with you!

November 2010

Skylar turned 1 Nov. 13th! We had a wonderful party for her at the park with lots of friends and family. Her wonderful nurses were able to be there..which is always a treat!Ryan and I never stop marveling over Skylar and the wonderful miracle she is, I just can't believe she already 1!
Her first thanksgiving home was such a sweet blessing. We were able to see all the family here in town and eat 2 huge thanksgiving meals! YUMMY!