Monday, December 28, 2009

We love you Skylar Jean!


Skylar made it to 3 pounds last night!!!

It has been while since we have updated this blog, so sorry. Skylar has done pretty well the last week or two. We did have a little scare with her the day before Christmas Eve. She had a fever most of the day and she could not get comfortable. They ran a bunch of tests, bloodwork and cultures. Everything came back normal, but her xray did show that she obtained a little more fluid in her lungs. The doctors started her back on lasix to help with the fluid in the lungs and they started her on some antibiotics because of her fever. They are giving her a very mild sedative to help her relax and rest because she has become more aware of her breathing tube and she wants it out! Skylar has managed to get her tube out a few times and reintubating is a lot of stress on her. Fortunatly, the last day or so she has been more relaxed and she is catching up on some most needed zzzzs! Skylar is so adorable, I have to admit her weight gain has made her look more and more like a baby with the rounded head and a tiny bit of fat around the arms and belly! Oh she is sooo cute! Ryan and I continue to pray for our little one that she will soon be strong enough to come off the ventalater and be home in Feb! Skylar has amazed us all, she truly is our little fighter and she continues to fight for her life everyday in the NICU..... Heavenly Father has given us a miracle and we couldn't be more blessed to have her here with us.

Thursday, December 17, 2009

Skylar has finally made it to 2 pounds!!!

Skylar weighed 2 lbs 3 ounces last night, what a triumph! The more she gains and grows the better it will be for her lungs. Unfortunatly she is struggling with her lungs, the right side is not expanded very much and there is a lot of scar tissue from the ventalater. The doctors watch her closely and they just make adjustments as needed to help support her lungs and help her breathe. Ryan and I hope that she will graduate off of the ventalater, but it may take some more time. Her lungs are her biggest struggle and sadly they are still so immature. Luckily, she is still fighting away and continues to have a little attitude, that I love. She is our fiesty girl and we are so proud of her. She continues to keep the nurses busy with poopy diapers, that must be changed right away, or she will have a lot to say about it! A few times a week we take turns holding her at night which is the most rewarding thing we do with her. Ryan and I look forward to spending Christmas with her next week and we continue to pray that we will be able to bring her home soon!

Friday, December 11, 2009


Skylars Nursing staff


To Skylar's wonderful nursing staff...Thank you! You truly hold a special place in our hearts for being so good with our little girl. It really makes us feel comfortable when we know you're there with her when we can't be.

(To be continued...we don't have photos of all of her nurses yet :)