Before and After Chemo

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On to the Next....

Skylar and I are heading off to Salt Lake Utah this weekend. After 2 rounds of chemo it is time to scan her belly and take a look at her tumor. If the surgeron believes it to be small enough...she will do surgery to remove a chunck of her liver that is affected. We found a wonderful surgeron in Utah who specializes in this type of cancer and is head of the pediatric surgery department and liver transplant team. If the chemo did not decrease the tumor enough for surgery than we will stay in Utah to get the third round of chemo. A week after that we will scan her belly again and try surgery at that time. We maybe in Utah for a few weeks to a couple of months. Ryan will stay here to work and keep that wonderful health insurance going! And he will come up and visit us on his days off. We will miss him very much and it will be hard for our little family to be apart, but it is whats best for our little girl.
We continue to ask for your love and prayers for Skylar. I want to thank everyone who has brought us meals these past weeks it has been a blessing. We love all of you very much. And a special thanks to our family for the support they have given us. My mom will be coming up with me to lend support and help wherever needed...thanks mom for being my best friend and Skylar's best babysitter!
Wish us luck and I will keep you all updated as much possible :)

Still here At UMC

Skylar will be at the hospital another day at least...last night was hard. She had to go up on her oxygen and she began breathing treatments. The RSV mixed with chemo is doing a number on the poor little girl. Maybe tomorrow we will go home it's up to her little body. The good thing is at least we are here at the hospital and we have the comfort that she is getting everything she needs. She will go back on iv fluids to give her some support because the vomiting has increased with the coughing attacks. She is getting little rest at night but makes up for some of it during the day. For some reason the nights are the worst for her. Well she is napping so I should be doing the same. :) Ill write again soon and always, thank you for your support and prayers.

Skylar's 1st chemo treatment

Skylar was admitted this past Monday to begin her 1st chemo treatment. She was given the first half Monday night over 6 hours and she did pretty well. Her nausea was not bad and she even found time to play Tuesday. The 2nd portion of her chemo was given Tuesday afternoon. By Wednesday morning she was very sick, but not from the chemo so much, but from the virus she caught on top of everything. Skylar has RSV which is a respiratory virus that little kids get. Because of her lung disease and the chemo the doctors wanted to keep a close eye on her so we are still here at the hospital. Its Friday and we are hoping to go home today if the pulmonologist and oncologist think she is strong enough. The good thing is she has not had a fever since last night and her lungs are still clear through her horrible cough and congestion. The worry is that by Sat or Sun she will begin feeling the side affects of the chemo and her blood counts will go down. Fighting chemo and this RSV is a lot for her. We hope that the virus will subside just enough so she can keep fighting.... Poor baby she is definetly being hit with so much. Keep her in your prayers because she needs all the strength she can get.
For those family members who may want to visit her the doctors just ask that everyone that comes in contact with her must have their flu shot and anyone with young kids should not be around her until the virus is gone because it is highly contagious....I'll post again soon.

So with 2010 ended and a new year beginning...my little family is again on the downward slope of our rollercoaster of life. What I mean is our baby girl is sick and it's as if we are in the NICU again not knowing what is going to happen, if she is going to be okay? Skylar was diagnosed with hepatoblastoma, liver cancer, last week. She is in stage 3 which means the tumor is unresectable and needs to be shrunk with chemo. The plan is to do at least 2 sessions of chemotherapy and see then, if it is smaller enough to remove. We pray everyday that her little body will be stong enough to handle the gruesome side affects of chemo. That she will not lose too much weight, that her lungs will stay strong and she will not become too weak. Skylar has always been a fighter and I know she is determined to be here as she has already shown everyone around her. We ask for your prayers that she will fight this and be a healthy and happy child. Tomorrow we will meet with the doctor and discuss the plan and schedule for her chemotherapy for the next 6 weeks. I will do my best to keep everyone updated on how she is. We hope to begin treatment this weekend.

Thank you all for your love and support. We are so blessed to have so many people by our side.

Skylar's last Sunday at church until Chemo is done, very cute