Saturday, March 6, 2010
Monday, March 1, 2010
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Still here.....
Yep...we are still here in the NICU...waiting for our baby girl to come home. It's hard to put a timeframe on her homecoming but we think that she is making great progress and will be home soon. Sorry :)....that's all we got! We know everyone is wondering!
So currently Skylar is battling a little cold...but she continues to amaze us with her strength and will. She is starting to bottle feed and continues to progress on the nasal cannula. Her oxygen flow fluctuates between 50-65% at 2L per min. She's still got some work to do but so far, so good. We hear that we will probably be taking her home on some form of oxygen and/or breathing treatments. That's just fine for us! We just want her home! NICU life is by no means an easy walk. Day after day we drive to the hospital...drive home...drive to...drive home...talk to the doctors...stamp the little parking pass...get in the overcrowded elevator to the 8th floor. Uggghhhhhh! Normal? What is normal? 2009 and beginning of 2010 has been the best time of our lives...but seriously, let's not do that again please.
On another note...Sky is still dealing with hydrocephalus. The doctors are watching it closely as it still continues to remain small. Jourdan and I just hope and pray that it somehow resolves. If you are wondering what this condition is...it's basically fluid build up within the ventricles of the brain. There is a wide span of severity and outcome for this but from what we know, Skylar's is mild, and probably developed from just being born premature.
Good news is that her ROP is stable...her lungs are improving, she's learning quickly with bottle feeding ,and is 6 1/2 pounds! We have also caught a few smiles now and then too!
Jourdan and I... and Skylar too want to thank everyone for your prayers and thoughts. We seriously couldn't get through this without you! You keep us going knowing that we have so many people that care.
We also want to extend a special thank you to Skylar's NICU nurses. We think the world of you! Skylar is where she is today because of the love you share with her! How lucky is she to have you there. The relief we feel when we hear your voice on the other line, or see you at her cribside as we walk through the door is huge! Thank you so much.
...more updates to come as we progress through the nasal cannula and feeding stage these next few weeks.
So currently Skylar is battling a little cold...but she continues to amaze us with her strength and will. She is starting to bottle feed and continues to progress on the nasal cannula. Her oxygen flow fluctuates between 50-65% at 2L per min. She's still got some work to do but so far, so good. We hear that we will probably be taking her home on some form of oxygen and/or breathing treatments. That's just fine for us! We just want her home! NICU life is by no means an easy walk. Day after day we drive to the hospital...drive home...drive to...drive home...talk to the doctors...stamp the little parking pass...get in the overcrowded elevator to the 8th floor. Uggghhhhhh! Normal? What is normal? 2009 and beginning of 2010 has been the best time of our lives...but seriously, let's not do that again please.
On another note...Sky is still dealing with hydrocephalus. The doctors are watching it closely as it still continues to remain small. Jourdan and I just hope and pray that it somehow resolves. If you are wondering what this condition is...it's basically fluid build up within the ventricles of the brain. There is a wide span of severity and outcome for this but from what we know, Skylar's is mild, and probably developed from just being born premature.
Good news is that her ROP is stable...her lungs are improving, she's learning quickly with bottle feeding ,and is 6 1/2 pounds! We have also caught a few smiles now and then too!
Jourdan and I... and Skylar too want to thank everyone for your prayers and thoughts. We seriously couldn't get through this without you! You keep us going knowing that we have so many people that care.
We also want to extend a special thank you to Skylar's NICU nurses. We think the world of you! Skylar is where she is today because of the love you share with her! How lucky is she to have you there. The relief we feel when we hear your voice on the other line, or see you at her cribside as we walk through the door is huge! Thank you so much.
...more updates to come as we progress through the nasal cannula and feeding stage these next few weeks.
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