Skylar has been home 3 weeks as of yesturday. So far things are going pretty well. She and I went on our first car ride to the doctors alone the other day and she was so good. Luckily she slept almost the whole way which was a 45 minute drive there and back. We went to our first Resturant, Macaroni Grill on Friday and she did very well...no tears just curious looks the whole time. Her oxygen is nothing to me it's just another part of her body and where she goes it goes. The tummy tube isn't bad either only at feeding time and that is not possible in public not yet anyway. I'm just not that comfortable with it.....So I plan my time away to only be between 2-3 hours so I can go home and feed her. As for Daddy he has been very busy with his new job and studying. He spends time with her at night when he gets home from work, but other than that he is gone from 7 to about 530 and he misses her soooo much. He catches up with her on the weekends. Skylar as most of you know is a daddy's girl! She loves it when daddy gets home and starts talking to her she always smiles and laughs with him, it's very cute. That is not to say that her and I don't have plenty of fun during the day I just know that she misses her daddy.
As for her health, she is gaining weight, keeping her food down better and breathing fine. Her oxygen did have to go up a little but without the lasix and breathing treatments things are just a little harder on her little lungs. Her development, mentally is good she is with in the norm of her age and she is really learning to use her hands and feet. Her favorite thing lately is eating her fingers and kicking. She holds her head up really well and we are working on rolling over and standing up. Ryan and I are very proud of our little fighter. We will be sure to let you know more in a couple of weeks, hopefully she will be at least a pound more!