Just an Update

Skylar has had a hard couple of days because her little belly is giving her troubles. For the past 2 weeks or so, after almost every feeding she vomits. Skylar is on many medications and it's upsetting her tummy, but it could be reflux or something else. The last couple of days she has refused to eat by the bottle and she is not taking enough to be able to get her ng tube out of her nose. Sadly it looks like she will be getting a g tube put in her belly which will allow us to feed her through her tummy, if she does not eat by mouth. And she can go home with the g tube in her belly unlike the ng tube down her nose that she cannot come home with. In the next week or so she will be having the tummy surgery. The things that make Ryan and I nervous about this is not the actual g tube, but the fact that she will be intubated again. It's scary because worse case, she could get stuck on the tube and have to be weened all over again. If all goes well and the tube comes out right away and there is no infection and she comes back down to a low rate of .2 liters per minute, than she could come home in a month! Skylar is a strong little girl and she has gotten through so much that we think she can do this too! Please keep your fingers crossed and her in your prayers because we need this tummy surgery to go well. I will keep you informed and let you know how it all goes!