Skylar is getting so big!

Skylar reached 8 pounds 10 ounces last night! Her chubby legs and arms are so adorable, she is our little chunk! Skylar's progress is an amazing thing to watch everyday. She is our little noise maker, constantly grunting and talking baby talk. She continues to put a smile on our face with her little expressions including the eye brow lift and scrunched face. Ryan and I love talking to her and even making faces at her because she will just stare at us trying to figure out what we are doing. The newest thing we have been doing with her is playing on a mat that is on the floor in front of her crib. We set up her baby gym and watch her play with the toys hanging above. Skylar has learned to scoot around on her belly and she loves to kick and wave her little arms! She is growing up and taking in everything and we love every minute of it! We are so thankful that there are cuddlers there to hold her when we can't be there and her nurses take such good care of her and we can't thank them enough.
As far as her health she is doing really well! The good news is that she is growing and gaining weight quickly. As she grows she will make new lung tissue and it will become easier and easier for her to breathe. Her oxygen settings still have to come down a lot, but she has made it from 2 liters to .9 in a couple for weeks. It is all a waiting game now. To go home her oxygen needs to be at a 16th of a liter, so it will be a little longer. Sadly we just got the news that her time frame of leaving the nicu will be from 3 more months to possibly being there her first birthday. The doctors can not push her on her oxygen because she has to do it all on her own. Unfortunatly, her severe lung disease enables the doctors to get her home any faster. It is all a matter of time. Ryan and I are trying to focus on what she is, a miracle that had only 10 percent chance of living and that 1 year of her life in the Nicu is nothing compared to the rest of her life with us here. I'm not saying it's easy because having her home is all we want everyday and the hospital was old a long time ago, but it is all out of our hands. Everything is up to our little girl, she is so strong and we are just so grateful that we know she will be okay and that she is coming home. We want to thank everyone that continues to follow her progress and we know that all the prayers from everyone has brought our little family miracles. I promise to be better and updating everyone sorry it has been awhile.